Lucky Me

We have a lottery bingo in work, we pick 6 numbers and the lottery numbers pulled out on Saturday night are crossed off Bingo style. I pay £1 a week the current one has been running for 4 weeks J won it last night £92 ….. go me!!!!


I had visitors yesterday my daughter   and my grandson , it was lovely to see them. We bought Dexter this T -shirt before he was born it has a superhero cape to it and he was wearing it yesterday. He looked adorable

Super dude indeed.

My dog here looking very guilty


She might well do, she has stolen Dexter’s toy Dipsy 😦 Usually, when Jess has a toy in her mouth you cannot go near her she will growl a warning but yesterday she knew she was being naughty and reluctantly handed it back without any fuss. A quick wipe with Baby wipes and no harm done ………


Post Holiday Blues

Can’t say I have had any, rather it was the holiday that I shouldn’t have gone on. It’s hard to admit that your ill, feel ill 24 hours a day and want to cancel a holiday that has been planned for a few months as there is always that feeling that maybe just maybe it will do you good, well I’m afraid it didn;t and I feel just as bad as before I went away I guess the only good thing is that I don’t feel worse.

It’s taken me a little while to catch up on all the surveys as a lot won’t let you do them outside the UK. The money has started totting up this week and we are now halfway through the month, hard to believe. This year seems to be going so fast.

So apart from the mountain of washing and the absolute mountain of ironing which I am slowly getting through not a lot else is happening. I need to sit to do the ironing and move the airer close to me so that I can place the clothes on the airer without getting up. Although my muscles ache like I have been through a major workout.

I’m still following my wheat free dairy free and sugar free limited  diet, yeah I’m struggling with the sugar bit and have had a bit here and there. I have lost nearly 1 stone (14lbs) so that is good

Tennis has featured a lot in my week and Roger Federer is my hero so glad to see he is in the final tomorrow at Wimbledon and he has played really well. I’ve currently got the Ladies final on 🙂

I’m sure I mentioned before that I really love crafts, knitting crocheting and cross stitch. My stash of wool is way too big for my own good but today I received these



I can’t wait to knit them up but have no idea what I’m going to make. Although I am working on a new idea to market involving something  I need to knit.

I received my ESA payment and today I have received a big booklet that I need to fill in to take my claim further. It seems highly unlikely that I’m going to be able to return to work as my health just does not seem to be getting any better at all

Off to watch the end of the Williams/Muguruza Ladies Final

Coping with the heat ….. not

I’m struggling with the heat I’m struggling with stairs at the moment too. My tachycardia is back with a vengeance. I haven’t been formally diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) but for the last 17 years have had bouts where my heart goes berserk on standing and climbing stairs becomes a nightmare. 

I was referred for a tilt table test and the waiting list was So long that by the time I had another 48 hour ECG  the tachycardia wasn’t as bad as it had been so I guess the appt just got forgotten 

Usually when I go on holiday the sunshine makes me feel better. This year I can’t tolerate the heat one bit. 

I found this video on YouTube which shows exactly what happens when I walk up stairs. Until you experience it you don’t realise how bad it is .

A hard few days

It’s been a hard few days. Work won’t pay me anymore SSP as they say my earnings haven’t been enough the last few weeks, my earnings haven’t been enough because firstly they have mucked up my wages for the last 2 months and I haven’t been paid correctly and secondly I was forced to return to work when I wasn’t well and the only way I could do this was to reduce my hours and now I don’t pay a stamp and am not entitled to sick pay 😦

Talk about a Catch 22 situation. I have phoned the Benefits office and discussed with them and they have advised me to apply for ESA and PIP  This relapse is definitely a bad one I have a chronic cough, pain in all my joints and chest pain almost continually day in day out. My blood pressure fluctuates from day to day I’m trying not to get too obsessive about recording it but on Saturday I felt dreadful and these are my blood pressure and pulse  readings below

Last night we heard an awful noise outside our house that sounded like birds fighting and there was a lot of mess over my car today that looked like blood 😦 This evening we had a seagull just sitting in the garden with a badly damaged wing

We contacted the RSPCA and they came out this evening and collected it the officer did not know whether it could be saved or not or whether he might have to humanely “put it to sleep” You can see the damage on the photo on the right 😦

We are going away on holiday on Sunday, I’m hoping that the sunshine and the relaxation will give me a new lease of life. We are going to Northern Spain so look out for photo overload on my return

One little money earner I forgot to mention when I did my Surveys post was  Spare5   this can literally be done anytime you have a spare few minutes on either a mobile app or a laptop and pays really well if you put the time in

Summer Over?

Well, what a glorious week or so we have had but today it has been a lot colder and drizzling most of the day 😦

I’m plodding along with my surveys and have so far received £40 worth of Amazon vouchers and £15 to my PayPal account plus 2 sales on eBay

Ebay seems very slow at the moment I just don’t know why? I use it quite a lot living in a rural area and not having a lot of choices as far as shops going plus at the moment being in a relapse of my CFS it’s difficult to go and walk around shops. I am back to the doctors tomorrow and I’m not going to be able to go back to work this week. This fills me with trepidation as I really don’t know what response I will get when I phone up. I have heard nothing while I have been off for the last 2 weeks and there hasn’t been much empathy when I did go back to work. I think I probably need an Occupational Health Referral and probably need some adjustments in work like more frequent toilet breaks etc I’m not sure whether any of this is feasible but I am really struggling at the moment.0138bdcb0c9e90572e50a0556f35b273263ce32076

I took this photo on Tuesday evening when we were walking the dog  🙂

Hot, Hot and Hot

The weather has been glorious for the last week or so, we live about a mile away from the beach and try to get down as often as we can with our dog Jess. She loves going for a paddle. Unfortunately this year I’m having difficulty getting down to the sand due to there being steps and this is the only access. Hopefully, I will soon be feeling the sand between my toes again IMG_0341

For the last 10 days, I have been following a no wheat, no sugar and no dairy diet it has been very hard and I have cheated a few times but I’ve lost almost 7lbs and my resting heart rate as really gone down. The postural tachycardia is still there but not as high a rate as it was. So at least some good has come of depriving myself.

I have been feeling really lethargic and have got listings to do on eBay as well as knitting to finish off for my Etsy shop but to be honest it has just been too hot

We started watching Riviera the other night, I like it and we have watched 6 episodes so it must be keeping my attention.  I find when I have a relapse that noise really irritates me and that my attention span is non-existent.  I’m in the middle of a really good book here but can’t bring myself to read more than 1 or 2 pages

If you like a good book then I can recommend Rachel Abbot, all her books are so good, I’m currently reading The Sixth Window

Tomorrow we are going to see my Mother which means an 80 mile round trip which we do every other Tuesday , we will be doing it twice this week though as it’s her birthday on Saturday, as my husband is working we will go over there on Sunday and make a birthday tea for her